Genetic and Rare Diseases Information Center
Contact information for the Genetic and Rare Diseases Information Center, sponsored by NIH's Office of Rare Diseases and the National Human Genome Research Institute. The Genetic and Rare Diseases Information Center (GARD) employs experienced ... [... more]
Human Genome Research Institute |
GARD & Rare Diseases Information Center
Welcome to the Genetic and Rare Diseases Information Center (GARD), a collaborative effort of two agencies of the National Institutes of Health The Office of Rare Diseases and the National Human Genome Research Institute to help people find ... [... more]
rarediseases.info.nih.gov |
Just the Facts
Just the Facts: FDA Fights Rare Diseases: New Help for Patients Without Treatments Years ago, people diagnosed with a rare disease might have found themselves with little hope for a medical treatment. This changed in 1983 when Congress passed ... [... more]
Food & Drug Administration |
La FDA Combate las Enfermedades Raras:
Spanish Just the Facts: FDA Fights Rare Diseases: New Help for Patients Without Treatments Hace algunos años personas sufriendo de una enfermedad poco común se encontraban con muy pocas esperanzas de gozar de un tratamiento médico. [... more]
Food & Drug Administration |
Celebrating the Successes of the Orphan Drug Act
The Orphan Drug Act was signed into law 25 years ago. Find out what it is, what it's done, and what it means for the future of millions of people with rare diseases and conditions Twenty-five years ago, former President Ronald Reagan signed into ... [... more]
Food & Drug Administration |
Orphan Products: Hope for People With Rare Diseases
The number of drugs and biologics approved since the Orphan Drug Act of 1983 is having a major public health impact on treating people with rare diseases. Jumping Frenchmen of Maine sounds like an uproarious, modern-day stage show or even a new ... [... more]
Food & Drug Administration |
"Rare Diseases"
Diagnosis and Treatment of Patients With Inborn Errors of Metabolism Phase II Randomized Study of Cultured Skin Substitutes Versus Split Thickness Skin Grafts in Patients With Severe Burn Injuries Study of Recombinant Human Insulin-Like Growth ... [... more]
Clinical Trials |
Genetic and Rare Diseases Information Center
Contact information for the Genetic and Rare Diseases Information Center, sponsored by NIH's Office of Rare Diseases and the National Human Genome Research Institute. The Genetic and Rare Diseases Information Center (GARD) employs experienced ... [... more]
Human Genome Research Institute |
It's hurricane and tropical storm season. Learn more:
MedlinePlus Health Information from the National Library of Medicine Start here with 750 topics on conditions, diseases and wellness About your prescription and over-the-counter medicines, herbs and supplements A service for finding local ... [... more]
medlineplus.gov |
It's hurricane and tropical storm season. Learn more:
MedlinePlus Health Information from the National Library of Medicine Start here with 750 topics on conditions, diseases and wellness About your prescription and over-the-counter medicines, herbs and supplements A service for finding local ... [... more]
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Rare Diseases and Related Terms
Rare diseases terms are either (1) terms for which information requests have been made to the Office of Rare Diseases, the Genetic and Rare Diseases Information Center, or the National Human Genome Research Institute; or (2) diseases that have ... [... more]
rarediseases.info.nih.gov |
NIH Office of Rare Diseases Research (ORDR)
The Office of Rare Diseases Research (ORDR) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORDR Web site provides information for patients and ... [... more]
rarediseases.info.nih.gov |
